No, I haven't joined the new Mickey Mouse Club, yet that is. The Mic-Key is a type of PEG tube that is waterproof. Tomorrow I get my PEG tube replaced with a Mic-Key tube and this one will let me do things like go swimming and kayaking, if I am up to it, on the lake. The current tube can not be submerged at all. I am looking forward to this. Last week when it hit 90 we opened up the pool and while everyone else was able to go in all I could do was sit on the ladder and put my feet in. Now I should be able to go swimming with the family. Yippee!
Swallowing Update
On the swallowing front I met today with the ENT doctor that did the initial diagnosis. He scoped me to check on how things were and also to take a look at the swallowing issue. He is also going to take a look at the tests the physical therapist did. So far he seemed to think that dilatation would be the direction to go. Tomorrow when I have the Mic-Key tube installed I am going to ask the GI doctor about his findings on dilatation as well.
I most likely won't have anything done until after I meet with the doctors up at the Roswell Park Cancer Institute in July. They see more of this type of cancer and I am curious as to what their thoughts are on the dilatation procedure.
One thing the ENT doctor did tell me is that many times the procedure needs to be repeated. In some cases the patients are able to do it themselves. Basically you have to stick something down your throat like a sword swallower. Either way anything that can improve the swallowing function would work for me.
Thursday, June 19, 2008
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